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Forum udruge "Zajedno do zdravlja" Dubrovnik • Pogledajte temu - pozdrav svima
Forum udruge "Zajedno do zdravlja" Dubrovnik
https://zajedno-do-zdravlja.hr:443/forum/

pozdrav svima
https://zajedno-do-zdravlja.hr:443/forum/viewtopic.php?f=17&t=756
Stranica: 1/1.

Autor:  bie [ 04-04-2011 13:03 ]
Naslov:  pozdrav svima

pozdrav svima...
slucajno sam naisla na ovaj forum i odlucila da vam pisem,jer kad se moje dijete razboljelo ovako sto nije postojalo.
mi se vec jako dugo borimo sa JIA.
moj sin ivan se razbolio sa 4 godine a sada ima 13 godina. 2 mjeseca nakon streptokokne angine poceli su bolovi u desnom koljenu koje je bilo samo lagano oteceno i toplo... SE CRP itd sve uredno...asmo neki imunoloski parametri nisu bili kako treba.
prosli smo nekoliko punkcija,dvije operacije koljena,mnogo lijekova ali jos se ne vidi svijetlo na kraju tunela :)
nadamo se da ce biti puno bolje
zato svim roditeljima a pogotovo nasim malim junacima zelim sto skoriji oporavak

Autor:  Maja [ 04-04-2011 14:49 ]
Naslov:  Re: pozdrav svima

Dobro došla!
Stvarno ste puno toga prošli, kako je Ivan sada, tko vam je doktor reumatolog?

Autor:  sonia [ 04-04-2011 19:24 ]
Naslov:  Re: pozdrav svima

Dobro došla i žao mi je što je stanje takvo kakvo je.Za početak gdje se liječite i što primate od terapije? Molimo uvijek svakog ko se ulogira da dolazi i piše što češće-pa ako ti nije problem samo navali.Inače su moj i tvoj sin vršnjaci...

Autor:  dragica1 [ 04-04-2011 21:31 ]
Naslov:  Re: pozdrav svima

Bie dobrodošla i od mene,nažalost najviše staža imate sa JIA,mislim da nam možeš biti mentor.
Drago mi je da si se javila,puno si toga prošla i možeš nam sigurno pomoći.

Autor:  kate [ 05-04-2011 08:38 ]
Naslov:  Re: pozdrav svima

Dobrodošla Bie.. ako bi kortistila fejs za ovo, pošalji pp bilo kojoj od nas.
Nadam se da će se i za tvog Ivana puno toga promjeniti nabolje jer više niste sami.

Kakav mu je AST titar bio i kakav je sada i kako se borite sa streptokokom jer je očito to žarište?
Jeste li vadili angine? Neka su djeca s uveitisom doživjela izlječenje nakon vađenja krajnika.
Ima logike da streptokok kod puno djece trigerira JIA. Djeca su od streptokoka zaštićena negdje do 3 godine, a baš tada puno djece dobije JIA.

U svakom slučaju drago nam je da si nam se javila.

Autor:  bie [ 05-04-2011 14:14 ]
Naslov:  Re: pozdrav svima

ljecimo se kod dr.Harijaceka...od terapije prima samo controloc,indometacin,salazopirin i probiotik(pod obavezno jer je nedavno imao krvarenja u stomaku)
AST je bio 400,pa onda u granicama normale(mislim da je bio 200)
krajnici su vadeni nedugo nakon prvih simptoma ali nista se nije promjenilo(mada smo se nadali)
ovo je treci put da pisem odgovor pa sam ga malo skratila,,,jer svaki put kad idem poslat javi se greska
ima li stranica na fejsu?

Autor:  kate [ 05-04-2011 14:30 ]
Naslov:  Re: pozdrav svima

pp

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